SENATE COMMITTEE ON HEALTH POLICY

March 11, 2003 Hearing Room B

1:00 p.m. Tapes 33 - 34

MEMBERS PRESENT: Sen. Bill Morrisette, Chair

Sen. Bill Fisher, Vice-Chair

Sen. John Minnis

Sen. Frank Shields

Sen. Charles Starr

Sen. Vicki Walker

STAFF PRESENT: Marjorie Taylor, Administrator

Saranelle Allen, Committee Assistant

MEASURE/ISSUES HEARD: SB 74 – Public Hearing

SB 357 – Public Hearing and Work Session

These minutes are in compliance with Senate and House Rules. Only text enclosed in quotation marks reports a speaker’s exact words. For complete contents, please refer to the tapes.

TAPE/#	Speaker	Comments
Tape 33, A
004	Chair Morrisette	Convenes meeting at 1:11 p.m. and opens a public hearing on SB 74.
SB 74 – PUBLIC HEARING
008	Marjorie Taylor	Administrator. Explains SB 74 and the SB 74-1 amendment (EXHIBIT A).
013	Sen. Peter Courtney	District 11. Testifies in favor of SB 74. (EXHIBIT B). This bill requires insurance company’s to continue to cover treatment for PKU dietary deficiency. The bill has a sunset. Reviews insurance ruling that stops coverage.
155	Sen. Minnis	Asks question on the amendments and why we are reviewing the bill at this time if the sunset has already been extended.
165	Sen. Courtney	States that the insurance company’s will oppose the bill.
	Kathleen Huntington	Oregon Health Sciences University. Submits written testimony and reviews a visual presentation in support of SB 74 (EXHIBIT C).
239	Huntington	Gives extensive details on the genetic metabolic disorder and the many factors involved in the care if this condition is diagnosed at birth. Advises a variety of costs incurred.
	Sen. Morrisette	Asks several questions on the life expectancy of people being treated, or not treated.
	Huntington	Explains that life expectancy could last into senior years.
261	Sen. Shields	Asks what happens to an individual who is on the diet for 20 or so years, and then went off diet.
	Huntington	Advises that problems do arise, most noticeably problems with mental concentration.
310	Dr. Cary Harding	Assistant Professor, Oregon Health & Science University. Submits written testimony in favor of passage of the bill, and continues to serve patients who are on the diet program (Exhibit D). States this program is world-wide, and there are 35 states on the books in the U.S. that offer this support. Further advises if an adult goes off the program it drastically impacts their mental abilities, and hinders them staying employed and functioning in daily life.
388	Sen. Shields	Asks how many states on the current list are going through the sunset renewals on the bills.
	Chair Morrisette	Asks what happens if a person goes to another state, and then has to reapply for this program.
420	Harding	Gives several answers.
448	Michael Skeels, PhD	Administrator. Oregon Department of Human Services. Submits written testimony in favor of SB 74 (Exhibit E). Advises he has screened 1½ million infants in the process.
Tape 34, A
020	Katie Kelsh	10 yr. old child. Gives written testimony on her own health with PKU (EXHIBIT F).
088	Tim & Sheryl Kelsh	Parents of Katie Kelsh. Gives additional written testimony on his daughter’s health, and the benefits of the dietary program. Speaks in favor of SB 74 (EXHIBIT G).
	Kelsh	Relates the family’s 9 month ordeal on getting their new insurance plan to cover their daughter’s health care. Testifies to request renewal to reinstate this legislation to insure insurance carriers continue the coverage.
148	Sen. Fisher	Asks question on processing food to eliminate the acid that causes the health problems.
	Kelsh	Gives specifics on the food product.
203	Joanne Rogovoy	March of Dimes. Testifies in favor of SB 74 (EXHIBIT H).
	Caroline Brenneman	Parent. Testifies in favor of SB 74 (EXHIBIT I).
330	Jennifer L. Jones	Citizen. Explains her health problems with PKU, and testifies in favor of SB 74 (EXHIBIT J).
	Sen. Walker	Asks questions on whether blood testing is required.
	Jones	Replies, yes, usually monthly.
372	Anne Bedney	Parent. Testifies concerning the health of her two year old son, Evan. Submits written testimony (EXHIBIT K).
	Pam Corona	Parent. Submits written testimony in support of SB 74 (EXHIBIT L).
	Susan King	Citizen. Submits written testimony but does not testify (EXHIBIT M).
	Sen. C. Starr	Submits written testimony from Janet and Tyler Reimers in support of SB 74 (EXHIBIT N).
	Chair Morrisette	Closes public hearing on SB 74. States that some amendments were being checked into and we will return the bill for a work session and take action at that time.
Tape 33, B
010	Sen. Walker	States concern on why we have to keep passing a sunset bill.
	Sen. Minnis	Raises question on hearing from insurance industry on these mandates.
020	Sen. Fisher	Reviews mandated bills on insurance.
	Peggy Anet	Health Insurance Association of America. Testifies that medical field is drastically changing and it is good to have reviews, and thus allow for changes in the statute as things improve.
030	Sen. Minnis	Asks if she is aware of any research in this particular area.
	Anet	States she has not looked into this illness and is not opposed to the bill.
066	Chair Morrisette	Closes public hearing on SB 74, and opens public hearing on SB 357.
SB 357 – PUBLIC HEARING
071	Sen. Tony Corcoran	District 4. Testifies in favor of SB 357.
110	Bob Repine	Director of Oregon Housing Community Services. Gives background on SB 357, and speaks in favor of a task force on affordable housing for developmentally disabled adults.
	Chair Morrisette	Asks questions on budget reimbursements.
	Sen. Corcoran	Advises additional information on funding.
250	Sen. Minnis	Asks if expanding the bill would be of benefit.
	Repine	Advises that each population that was noted may have some commonality, but there are a lot of other areas that don’t.
	Sen. Corcoran	States there is no intent of leaving out any groups, i.e., faith-based.
	Chair Morrisette	Gives additional information on a group in Springfield.
	Sen. Minnis	Expresses further concern on expanding the opportunities of the bills.
Tape 34, B
	Francisco Lopez	Executive Director. Integrated Services Network. Gives testimony in favor of SB 357.
020	Lou Enge	Mainstream Housing. Gives testimony in support of SB 357 (EXHIBIT O). Explains the types of housing being developed in this area. Expresses hope that affordable housing can be made available, since most developmentally disabled individuals are on extremely limited income.
	Chair Morrisette	Advises that this bill goes to Ways and Means next.
	Carol McLeod	Parent, Dundee, OR. Gives testimony on her son’s behalf with concerns on adult housing. States she works for sustainable housing for developmentally disabled children.
160	Angie Keim	McMinnville, OR. Gives testimony in support of SB 357, explains her health issues.
188	Bob Smith	Parent, Newberg, OR. Submits written testimony in favor of SB 357 (EXHIBIT P). Advises how his in-home care facility for his 33-year old daughter has worked, and fears that it won’t be continued once he and his spouse are no longer alive.
	Ralph Rogers	Submits written testimony but unable to testify due to time constraints (EXHIBIT Q).
	Janine Delaunay	Submits written testimony but unable to testify due to time constraints (EXHIBIT R).
	Chair Morrisette	Closes public hearing and opens a work session on SB 357.
SB 357 – WORK SESSION
230	Sen. Minnis	MOTION: Moves SB 357 to the floor with a DO PASS recommendation and BE REFERRED to the committee on Ways and Means by prior reference.
232		VOTE: 6-0 AYE: In a roll call vote, all members present vote Aye.
	Chair Morrisette	The motion CARRIES.
234	Chair Morrisette	Adjourns meeting at 3:02 p.m.

EXHIBIT SUMMARY

A – SB 74, proposed amendment to SB 74-1, staff, 6 pp.

B – SB 74, written testimony, Sen. Peter Courtney, 2 pp.

C – SB 74, written testimony, Kathleen Huntington, 20 pp.

D – SB 74, written testimony, Dr. Cary Harding, 1 p.

E – SB 74, written testimony, Michael Skeels, 2 pp.

F – SB 74, written testimony, Katie Kelsh, 2 pp.

G – SB 74, written testimony, Tim Kelsh, 3 pp.

H – SB 74, written testimony, Joanne Rogovoy, 3 pp.

I – SB 74, written testimony, Caroline Brenneman, 2 pp.

J – SB 74, written testimony, Jennifer Jones, 1 p.

K – SB 74, written testimony, Anne Bedney, 2 pp.

L – SB 74, written testimony, Pam Corona, 1 p.

M – SB 74, written testimony, Susan King, 1 p.

N – SB 74, written testimony, Janet & Tyler Reimers, 2 pp.

O – SB 357, written testimony, Lou Enge, 9 pp.

P – SB 357, written testimony, Bob Smith, 1 p.

Q – SB 357, written testimony, Ralph Rogers, 2 pp.

R – SB 357, written testimony, Janine Delaunay, 2 p.